REMOVING BARRIERS TO PARTICIPATION
We have the ability to build large, person-centred communities who collaborate with research over the long-term. Individuals can now participate with research as active partners, in a way that is personalized and convenient to them. They can be matched and enrolled into relevant trials more easily and quickly than currently possible.
LEARN FROM THOSE AHEAD OF YOU. HELP THOSE WHO FOLLOW
Many people are motivated to share their health data for the benefit of society. In doing so, they help those on health journeys behind them. Each person’s experience may lead to insights that benefit those who follow.
SHARING THE COLLECTIVE WISDOM
Knowledge generated from research must integrate into clinical practice in real-time. With each piece of data generated, with the specific permission of each individual, medicine gets smarter and better able to help them and those who follow.
CONSUMER MEDIATED DATA COMMONS
As data accumulate, people can build consumer mediated data commons and decide collectively who may learn from their data. Now, data, rather than being wasted or sequestered, are leveraged. People are part of a virtuous community using their data for the common good – even as they may also be benefitting individually.