How is Hugo able to add patient portals without contracts with Health Systems ?
All Covered Entities with certified EHR’s (approximately 98% of hospitals and 73% of individual providers), are mandated to allow people to “view, download and transmit” their health information. Because we are leveraging this HIPAA right, people are authorizing our proprietary software to access their patient portal and pull their Continuity of Care document (CCD) into their own secure cloud-based Hugo account.
Our software then harmonizes, de-duplicates, normalizes and presents the data in easy to read format. Although people have had the right to their information since HIPAA became law - before Hugo there was no easy and automated way to leverage this right.
What functionalities are available as of Q3 2017?
- Hugo software can connect to any health system/provider that has implemented standard EPIC and Cerner patient portals, essentially 80% of the market. By the end of 2017, we will have ability to add health systems with standard Allscripts and Meditech installations. EHR systems are being added continuously.
- CVS and Walgreens Pharmacy connections will be completed by the end of November 2017.
- Basically any device with a consumer facing API can be connected yto Hugo. To date, data from FitBit and Nokia products such as wireless scales are connected to Hugo and EKG readers such as AliveCor will be connected by the end of 2017.
- Surveys and PROMs are delivered via email and linked to the user’s browser to avoid the necessity of opening the app to answer questions.
- Investigator dashboards to view data in real time
- User facing app the displays health data in a filtered timeline, the allows a user to share data with researchers
Hugo’s success is dependent on people connecting their patient portals. How good is this data and is this model sustainable?
We did not want to wait. Hugo has been built for the ready, when solutions such as FHIR become industry standard and the dependency on portals for access to data will no longer be necessary. However patient portals do provide “good enough data” while we wait. And the industry is moving towards more access to data rather than less. Portal awareness and usage is improving and we are focused on solutions to help our users stay connected.
Can the data from Hugo be ingested back into a system’s EHR?
The short answer is yes. Technology is not the barrier - it is a cultural issue. Health systems are resistant to receiving data from outside of their own system. We expect that these walls will eventually come down and if Hugo users choose to share their data back with a provider Hugo is able to make that happen.
When will Hugo be available to consumers?
Hugo is available to anyone from the iTunes and Google Play stores today. However, our focus as been on developing Hugo as a tool for collecting Real World Evidence. The first step to contribute to a learning health system is by changing the paradigm in research to empower people as partners in clinical studies, post market device surveillance, patient registries and trials. As our user base expands, cultural changes occur across the industry and technology evolves, the Hugo platform be in a stronger position to impact population health, clinical care coordination and disease management - and a powerful tool for the general consumer market.
How is Hugo different from other solutions on the market?
While there are solutions that: collect clinical, survey and device data for use in clinical and research settings; offer personal health record collection; are working to solve the problems of interoperability; and are focused on big data - no other solution puts people first. No other solution is a fiduciary for people to give them control over their data while providing valuable opportunities to put their data to good use. No other solution is building a “people powered data partnership” between those who generate data and those who need that data to advance research and improve lives. No other solution is a platform to enable, with permission, the seamless movement of data with and user friendly app to encourage people to take control of their health information.
How easy is Hugo to use?
We spent the first nine months of development talking to potential users of all ages and backgrounds. We met with Patient Family Advisory groups, patient and health care advocates, hospital leaders, physicians and researchers to seek feedback on app functionality and features. We have an “early adopter” community of individuals willing to test new features and to offer support. Last springwe completed a 200 person pilot study that represented among other demographics, ages 20 -70+years, for feedback and 91% found Hugo “easy or very easy” to use.