3. PRIVACY MEETS A COMMON GOOD

Individuals do not have to choose between privacy and sharing their data to improve the lives of others. People must control the use of their own data - however we are equally committed to building a community of informed data partners who understand the power that personal health information can have in improving health care for all. 

In order to provide a secure and trusted platform for Hugo users to partner with organizations, researchers, industry and others to share their data, the following criteria are met:

  • Data sharing opportunities presented to users will describe the purpose, list a point of contact and identify the duration of the project
  • Provide an opportunity for the user to opt out at any time and to stop the sharing of information
  • Participant understands exactly what information they are sharing and how it will be used
  • Participant’s information will be used for the stated purposes only
  • Participant must grant explicit consent to participate and to share their data


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